Monday, May 16, 2011

Autoimmune Diseases (Autism &Fibro Winners)

I was at the foot doctor, getting a shot in my heel for a swollen foot that wouldn't calm itself. While there, my doctor noticed a rash on my face that surrounded my eyes and nose. "I'm not trying to alarm you," he said, "but I would really like to test you for Lupus."

Not trying to alarm me?? I went home straight away and did some research and I FREAKED. Reading the list of symptoms on WebMD, I was certain, within seconds, my foot doctor was correct. I had Lupus.

Luckily, I found out later, after many, many tests, I have Fibromyalgia and that it mirrors the symptoms of Lupus, even down to the rash I can get on my face. I still have to go through tests every year to make sure I'm not developing one of SEVERAL autoimmune diseases. (I'll include the daunting list shortly.)

A wonderful woman I know has Lupus. She's lost parts of herself, most recently ALL of her teeth are gone. She's in her early twenties.

I haven't spoken to her in a while, having moved away, but she's constantly in my thoughts, and I ask after her whenever I talk to my MIL. She's the reason I added this cause to May Awareness. At least, the biggest part.

I also know a young man with Vitiligo, which means his skin loses pigmentation. Blotches of white takes over his beautiful bronze flesh, turns his hair white one patch at a time and makes him look older than he is. At this stage, he's slowly watching it develop, not knowing how to stop it.

Before you blow this condition off as no big deal, think about the emotional ramifications of your face turning colors...and what people will think when they see your face, your arms, your legs, and even your privates all blotched. Can you honestly say you wouldn't be startled to see a visual discoloration in a private area you weren't about on someone's face? Could you look passed the multiple colors or would you wonder what they had and if you could catch it? You'd be normal to do so, but it's those thoughts that haunt those with this condition.

Autoimmune diseases are everywhere. Chances are you or someone you love will discover you have one of these conditions at some point. Don't believe me? Check out this list provided by American Autoimmune Related Diseases Association, Inc.

List of Autoimmune and Autoimmune-Related Diseases

Acute Disseminated Encephalomyelitis (ADEM)
Acute necrotizing hemorrhagic leukoencephalitis
Addison's disease
Allergic asthma
Allergic rhinitis
Alopecia areata
Ankylosing spondylitis
Anti-GBM/Anti-TBM nephritis
Antiphospholipid syndrome (APS)
Autoimmune angioedema
Autoimmune aplastic anemia
Autoimmune dysautonomia
Autoimmune hepatitis
Autoimmune hyperlipidemia
Autoimmune immunodeficiency
Autoimmune inner ear disease (AIED)
Autoimmune myocarditis
Autoimmune pancreatitis
Autoimmune retinopathy
Autoimmune thrombocytopenic purpura (ATP)
Autoimmune thyroid disease
Autoimmune urticaria
Axonal & neuronal neuropathies
Balo disease
Behcet’s disease
Bullous pemphigoid
Castleman disease
Celiac disease
Chagas disease
Chronic fatigue syndrome**
Chronic inflammatory demyelinating polyneuropathy (CIDP)
Chronic recurrent multifocal ostomyelitis (CRMO)
Churg-Strauss syndrome
Cicatricial pemphigoid/benign mucosal pemphigoid
Crohn’s disease
Cogans syndrome
Cold agglutinin disease
Congenital heart block
Coxsackie myocarditis
CREST disease
Essential mixed cryoglobulinemia
Demyelinating neuropathies
Dermatitis herpetiformis
Devic's disease (neuromyelitis optica)
Discoid lupus
Dressler’s syndrome
Eosinophilic fasciitis
Erythema nodosum
Experimental allergic encephalomyelitis
Evans syndrome
Fibrosing alveolitis
Giant cell arteritis (temporal arteritis)
Goodpasture’s syndrome
Graves' disease
Guillain-Barre syndrome
Hashimoto's encephalitis
Hashimoto’s thyroiditis
Hemolytic anemia
Henoch-Schonlein purpura
Herpes gestationis
Idiopathic thrombocytopenic purpura (ITP)
IgA nephropathy
IgG4-related sclerosing disease
Immunoregulatory lipoproteins
Inclusion body myositis
Insulin-dependent diabetes (type1)
Interstitial cystitis
Juvenile arthritis
Juvenile diabetes
Kawasaki syndrome
Lambert-Eaton syndrome
Leukocytoclastic vasculitis
Lichen planus
Lichen sclerosus
Ligneous conjunctivitis
Linear IgA disease (LAD)
Lupus (SLE)
Lyme disease, chronic
Meniere’s disease
Microscopic polyangiitis
Mixed connective tissue disease (MCTD)
Mooren’s ulcer
Mucha-Habermann disease
Multiple sclerosis
Myasthenia gravis
Neuromyelitis optica (Devic's)
Ocular cicatricial pemphigoid
Optic neuritis
Palindromic rheumatism
PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcus)
Paraneoplastic cerebellar degeneration
Paroxysmal nocturnal hemoglobinuria (PNH)
Parry Romberg syndrome
Parsonnage-Turner syndrome
Pars planitis (peripheral uveitis)
Peripheral neuropathy
Perivenous encephalomyelitis
Pernicious anemia
POEMS syndrome
Polyarteritis nodosa
Type I, II, & III autoimmune polyglandular syndromes
Polymyalgia rheumatica
Postmyocardial infarction syndrome
Postpericardiotomy syndrome
Progesterone dermatitis
Primary biliary cirrhosis
Primary sclerosing cholangitis
Psoriatic arthritis
Idiopathic pulmonary fibrosis
Pyoderma gangrenosum
Pure red cell aplasia
Raynauds phenomenon
Reflex sympathetic dystrophy
Reiter’s syndrome
Relapsing polychondritis
Restless legs syndrome
Retroperitoneal fibrosis
Rheumatic fever
Rheumatoid arthritis
Schmidt syndrome
Sjogren's syndrome
Sperm & testicular autoimmunity
Stiff person syndrome
Subacute bacterial endocarditis (SBE)
Susac's syndrome
Sympathetic ophthalmia
Takayasu’s arteritis
Temporal arteritis/Giant cell arteritis
Thrombocytopenic purpura (TTP)
Tolosa-Hunt syndrome
Transverse myelitis
Ulcerative colitis
Undifferentiated connective tissue disease (UCTD)
Vesiculobullous dermatosis
Wegener’s granulomatosis
**NOTE Fibromyalgia and Chronic Fatigue are listed, not because they are autoimmune, but because many persons who suffer from them have associated autoimmune disease(s)

Can you believe that massive list? It should scare you a little. But what I really hope it does, is move you into making a donation. ::smiles:: In a perfect world, no one would have to experience any of these conditions...maybe we can help make that a reality. ::hugs::

Thank you so much for coming today, and please consider donating to:

AARDA American Autoimmune Related Diseases Association, Inc. <~~~DONATION LINK

Today's Giveaways:

Romance and Erotic Romance Author Allure Van Sanz EBook (Your choice)
Indie Author Dana Taylor giving away a copy of her EBook Devil Moon
Author Elaine Cantrell giving away an EBook copy of A New Dream


Allure Van Sanz EBook (your choice of Noble Romance book)or T-shirt (Winner's choice) - Molli

Allure Van Sanz EBook (your choice of Noble Romance book) - Susan

Allure Van Sanz T-shirt - Bonnie F.

Erotic Author KevaD eBook Sunday Awakening - Dena Celeste


Romance Author Lee Ann Sontheimer Murphy’s Paranormal Romance Love Tattoo - Patti Shenberger

Author Rachel Firasek is giving away a signed print copy of Piper’s Fury - Kat Jameson

Quilting Genius Helen from Cute and Cuddly Quilts is giving away a free small quilt (pictured) - Suzie Quint


CJ Archer said...

Wow, that is a lot of diseases. I had no idea there were so many under the autoimmune umbrella.

Keep up the great work, Allure, you're doing a wonderful thing in bringing these to everyone's attention.

molli said...

It was really depressing to go down the list and check off the ones I have that the Dr has lumped under the "Fibro" umbrella...sigh.

DA Kentner said...

Congrats, Dena Celeste

I hope you enjoy "Sunday Awakening."

Liz said...

thanks for bringing this out for us...I suffered from what I thought was Crohn's Disease in college and was miserable with it for an entire 18 months until they did some test or another and figured out it ulcer!

Nasty business all around. I'm sorry you are suffering but am glad you bring your writing talents to bear to share them with us.

Cute and Cuddly Quilts said...

Congrats Suzie Quint

desere_steenberg said...

Fighting for such a amazing cause you rock Allure !!

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Kaieza Damien said...

Hi there! great stuff here, I'm glad that I drop by your page and found this very interesting. Thanks for posting. Hoping to read something like this in the future! Keep it up!

Ocular cicatricial pemphigoid is an auto immune disease affecting the conjunctiva. You will remember, from the first Patient Information entry on this Web Site, that auto immune diseases result from dysregulation of the patient's immune system, with the white blood cells becoming ""confused"" and beginning to attack not only germs but also part of the patient's own body. In rheumatoid arthritis, for example, the white blood cells become confused and begin to attack tissue in the patient's joints. In pemphigoid, the white blood cells attack skin and mucous membrane, particularly mucous membranes of the mouth, eyes, nose, throat, vagina, and rectum. Patients may or may not have more than one site affected by the disease, but 70% of the patients with cicatricial pemphigoid have eye involvement. And because this is a systemic autoimmune disease, it cannot be successfully treated, long-term, with simple topical (drops) therapy. It must be treated systemically, and typically with strategies that ""cool down"" the immune system, i.e., suppress the immune system sufficiently to stop the autoimmune process. Suppressing the immune system sufficiently to stop the autoimmune process for a short period (one to five years) is usually sufficient to enduce permanent remission of the disease. If this is not done, then continued inflammation, continued scarring, and eventual blindness in both eyes usually occurs.